SOUTH EASTERN EUROPEAN CF CONGRESS
For the first time on the territory of Ukraine in Kiev the EASTERN EUROPEAN CONGRESS ON MUCOVIDIDOSIS was held.
During the congress, clinicians, researchers, and patient representatives were introduced to modern methods of diagnosis and treatment of cystic fibrosis in the Netherlands, the United Kingdom, Belgium, Spain, Slovakia, Poland, Germany and Ukraine.
President of the European Cystic Fibrosis Association https://www.cf-europe.eu/ Jacqueline Noordoek (Netherlands) noted that it is only through joint efforts, large or small, that the problem of cystic fibrosis in Ukraine as a mountain can be eliminated.
Larisa Voloshina, President of the All-Ukrainian Association for the Care of Cystic Fibrosis Patients, stressed the importance of registering and having a positive experience in including a registry of Ukrainian patients in the European cystic fibrosis registry. Larisa also noted the need to create expert centers on Orphan diseases, in which specialists who are familiar with the disease will work with patients. Cystic fibrosis is life-long, so it is extremely important.
More than 260 participants attended the congress, of which 140 are doctors and 120 are patients and representatives of patient organizations from all over Ukraine, as well as Latvia, Bosnia and Herzegovina, Montenegro, Poland, Serbia, Slovakia and Turkey. Thanks to the international composition of the participants, a very warm atmosphere was created in the event, in which everyone wanted to exchange experiences and thoughts about the future. According to the survey, most participants found the congress extremely useful, and also enthusiastically said that the most useful were the reports of foreign experts.
It is important to note that this congress is accredited by the European Accreditation Board for Continuing Medical Education (EACCME) for a maximum of 10 European CME points (ECMEC) and each medical representative could receive these points.
Premier Hotel Rus
Hospital, 4, Kyiv, Ukraine
September 6 – 7, 2019
European Cystic Fibrosis Association (CF Europe)
Rimon Medical Innovation Development Foundation
State Institution «Institute of Hereditary Pathology of the National Academy of Medical Sciences of Ukraine»
West Ukrainian Specialized Children’s Medical Center
NGO “All-Ukrainian Association for the Care of Cystic Fibrosis Patients”.